Saturday, September 16, 2017

Day 2

I was able to drop the inhaler down to 1 puff twice a day.  No wheezing.  

My daughter and I were out and about today.  I purchased some paints so I can start painting rocks.  When we were at the airport in June I found a painted rock and I've been wanting to paint some ever since.  I guess the painted rock craze is all over.  You paint them and then leave them all over town for people to find.

My total weight loss as of today is 77 pounds.  These last 15 pounds are the hardest to lose.  I keep losing and gaining the same 2 pounds.  Eventually I'll lose it.  I'm just proud that I have continually lost weight for the past two years and kept it off.  That's an accomplishment for me.  Over the years I've gained and lost so many times I lost count.

My husband has restless leg syndrome.  Only it affects his entire body.  He twitches and jerks his legs violently.  Sometimes he kicks so hard he sends Bella flying off the bed.  If I'm not deep asleep before he comes to bed I can't go to sleep.  Last night he woke me up about 2 am and I could never get back to sleep.  I finally gave up at 4 am and just got up.  It's 7 pm now and I'm about to crash.  I'm trying to stay up until 9 so I don't wake up too early in the morning.

All in all I'm feeling better every day!

My daughter is having an MRI on Tuesday.  Trying to figure out why she is having recurring stomach pains accompanied by diarrhea and vomiting.  She had to return to the ER last Wednesday to get IV fluids.  This time the ER doctor said it is something but he doesn't know what.  Maybe the MRI will tell them something.  She seemed fine today but it could hit again tomorrow.

Well I think I will get ready for bed and just veg out for awhile.  Ron is with Mike watching a football game so I have the house to myself!

Friday, September 15, 2017


Well I got the results of my tests yesterday.  The pulmonary function test I scored higher than normal.  The CT scan didn't show anything abnormal other than some scarring from an old bout of pneumonia.  They did see a spot (sclerotic focus at the T5 vertebrae that may represent atypical hemangioma.  The doctor said to follow-up with another specialist.  

I was supposed to reduce my inhaler to one puff twice a day.  I tried it this morning and within an hour I had a slight wheeze.  Just took another puff on the inhaler and the wheeze is gone.

The doctor wanted to wean me off the meds to see if the bronchitis would come back.  I think I got my answer this morning. 

I'll try again tomorrow and see what happens.  If I start wheezing I'll call the doctor's office to see what I'm supposed to do.


Wednesday, September 6, 2017

Human Pin Cushion

Had my CT scan and pulmonary function tests today.  It took 7 sticks to get the IV started.  They had a nurse come down from radiology with an ultrasound machine so she could locate a vein.  My arms look like a pin cushion.  Fortunately none of it hurt but it just took forever.

The respiratory therapists said I did very well on the pulmonary tests.  For the last 2 days I've had no wheezing or coughing.  Thank goodness.  I'm beginning to feel better about everything.  I see the doctor next week and will get the results of the CT scan.

This weekend is the county fair.  It is at the fairgrounds just down the street from out house.   We always like to walk to the fair and just walk around.  The weather is unusually cool right now so it will be a perfect time to go.  I'm hoping James, Miranda and Piper will go with us.

Well, I'm looking forward to another day!


Monday, September 4, 2017


Wild day yesterday!  My son-in-law called me about 10:30 in the morning saying my daughter was sick.  She had vomiting and diarrhea and he wanted to know what to give her.  While he was on the phone she passed out and he couldn't revive her.  We called 911 and then headed to the house.  By the time we got there the ambulance was there and they transported her to the hospital.  We spent 7 hours waiting in the waiting area.  After a lot of tests including CT scan of the abdomen they released her saying they thought it was a virus.  Duh....

However her CT showed what they think is a cyst on her liver so she will need to see her primary care doctor. 

While this was going on twin #2 ended up in the minor emergency because she woke up with her eyes swollen shut.  It was all quite a day!

Never a dull moment!

Friday, September 1, 2017

Side Effects

I think I am having every side effect attributed to Albuterol.  My hands shake, my throat is irritated and causing it to be hoarse.  I'm jittery as all get out.  The other thing is I'm so fatigued.  I just can't go much longer than 3:30 before I'm just exhausted.  

My CT scan is scheduled for the 6th along with the pulmonary function test.  I'm hoping that we when see the doctor again he will adjust the Albuterol.  I'm sure going to tell him how it is making me feel.  I tried to explain it to Ron and said I just don't feel like myself.  When I get too tired I just want to cry.  Emotions right on the surface.  That may also be due to the steroids I'm taking too.

Anyway, today was kind of rough.  I met my daughters at a shopping mall and tried to keep up with all of them but it wore me out.  I did go home with them so I could see Piper and she was like of shot of adrenaline.  Oh my, I now know what I've been missing all these years.  There is nothing like being greeted by the smile of a one year old!  She just ran straight into my arms!

I know this is going to get better and I feel guilty for complaining but I'll admit, I am struggling.

Thursday, August 31, 2017

Hello Julia Childs

My goofy brother decided to call me at 5:30 am to ask a cooking question!  My first thought was to drive to his condo in my nightie and strangle him myself.  But he got a stay of execution.  In fact I didn't even try to explain to him that his question could have waited because he never would have understood anyway.  Mike operates from one thought to the next.  

Of course I set myself up for this.  I put something on his weekly menu that threw him a curve.  I made him a frozen pizza and it's on the menu for lunch today.  He needed to know (at 5:30 am) how to cook it.  Of course he needed 6 hours to prepare to it on a paper place and put it in the microwave.  

No worries though........I'll remember next time to write (do not call before 7 am on his menu board)

My saint of a husband is taking Mike out tonight for a rib dinner and then to a high school football game.  I'll have the whole evening to plan Mike's weekly menu and get my grocery list written.  I usually cook on Saturday and then we deliver meals Sunday afternoon. 

The sun is shining today and I am looking forward to a good day.  I was too tired yesterday afternoon to go see Piper so my daughter let her face time with me.  How fun!  Sometimes technology is the bomb!  I was told the little miss asked where "D D" was when they picked her up from daycare.  (Be still my heart) I think the little bugger likes me.

Wednesday, August 30, 2017

Having A Girl Day

Now I'm not what anyone would call a "religious" person.  But I have always felt and been aware that there is something or someone greater than myself working on my behalf.  I've had too many experiences in my life that confirm this so I don't doubt it for one second.  Many times I am in awe that I have been so blessed in my life and can't imagine that I've done anything to have deserved it.  Having my daughter's half-brother come into our lives is such a gift.  I have always wished to be a grandmother.  Actually I have longed to be a grandmother.  But I've tried to graciously accept the fact that it wasn't my decision to make.  Hard for someone like me who THINKS they have so much control....  I guess it's good to be reminded every now and then that we don't!

Anyway, with my new (son by another mother) a little girl has blessed my life and oh what a blessing she is just when I needed it most.  Again, that force working in my behalf.   

Last night I asked Ron to take me to see Piper before she had to go to bed.  Just playing with her and hearing her call me "D D" made my day!  What is it about a little child that just makes you forget every worry?  She is so precious and a surprise I wasn't expecting.  I guess some GOODNESS can come with the bad.  Once again I've been blessed!

Today I had lunch with a former work friend.  She is another blessing!  She's the little sister I never had.  Linda was diagnosed with MS over 25 years ago.  She did remarkably well for nearly 20 years and then her MS became progressive.  She now uses a can to walk and has a device that straps to her leg and helps with foot drop.  It sends a shock to the nerve in her leg that makes her foot lift up to walk.  It's really quite amazing what can be done to assist people with disabilities.

We went out for lunch and then to the mall to shop.  I really enjoyed spending time with her today and I then I needed it.  I did notice that I was very tired by the time we got home.  My voice sounds like I'm hoarse or just don't have enough air.  (No volume)  Talking makes me tired.  I decided to get the prescription changed in my glasses and hopefully it will help me navigate until I decide to have the cataract surgery.

I sure hope this feeling of being wired for sound will subside after I finish the steroids.  It really makes me feel quivery and nervous.  It's time for a quick nap.  I'm worn out!